By O. M. Jensen D. M. Parkin R. MacLennan C. S. Muir R. Skeet
This booklet is the normal reference guide of melanoma registration method and makes use of. It presents instructions on all points, comparable to the institution of a registry, assortment, coding, verification and research of information, and the makes use of to which melanoma registry facts can be placed. Emphasis is on population-based registration, which gives details on an outlined inhabitants and allows calculation of prevalence charges. Such registries are priceless in melanoma epidemiology (identification of attainable aetiological factors), in making plans well-being prone, and in tracking the effectiveness of melanoma prevention and remedy.
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Additional resources for Cancer Registration: Principles and Methods (I a R C Scientific Publication)
Whether files of patients relating to successive hospitalizations are combined, and how the system can be used to check the completeness of reporting on all cancer cases seen in the hospital. In the case of an emergency admission, only minimal data may be on hand: it is not always realized that cancer patients may be admitted as emergencies, with obstructed bowel, perforated malignant gastric ulcer etc. Based on this detailed knowledge the registry can decide on the items of information to be collected (see Chapter 6), and it can devise a system of collecting the information applicable to local needs but nevertheless providing high quality information for a tumour registry.
Particular attention should be paid to the influence on incidence rates of tumours only discovered at autopsy. A Data sources and reporting 33 special code should be allocated to such cases so that their effect on incidence can be evaluated (see Chapter 6 , item 19). The number of tumours discovered at autopsy reflects, to some extent, the intensity of investigations carried out, as well as autopsy rates. In some countries, the report from an autopsy on a death reported to the coroner may only be available from the coroner.
Population figures by sex and five-year age group are required for the registration area and for any subdivisions which the registry might wish to examine. In countries where it is not possible to monitor internal and external migration, estimates of population for intercensal years may be imprecise. The cancer registry must use the definitions of population groups, geographical areas etc. exactly as they are presented in the official vital statistics. Legal aspects and confidentiality Reporting of cancer cases to a registry may be voluntary, or compulsory by legislation or administrative order.